For those who knew Jerri, you understand that she was full of life, would converse with absolutely anyone, and if there was music playing, she was dancing. She relished a good night out at one of her favorite restaurants, complete with appetizer, main course, dessert, and drinks to accompany each part of her meal. She raised us with one principle as our foundation: God. She encouraged us to pray, to converse with Him, to trust Him, and to find solace in the knowledge that we are never truly alone, even on our most challenging days. He would be there to listen, lift us up, and guide us down the right path.

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Jerri spent the majority of her life in Hull, Massachusetts, and Fort Myers, Florida. She loved every aspect of the ocean and beach. She would recount tales of her bedroom, looking out at the Boston Lighthouse, watching that light revolve every single night, during both serene and stormy times. She had a deep affection for her hometown, and when she joined Jesus, she was laid to rest there, overlooking that very same lighthouse.

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Reflecting on the journey our mother embarked on, from the joyful, dancing lady that she was, to the end where we were planning those final details, we remember the grace with which she battled this malevolent disease. It is a brutal ailment, cruel to both the sufferers and their caregivers—who are often family or loved ones. In many cases, patients do not even recognize their caregivers. There is no other word to describe it but heartbreaking.

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Fortunately for us, our mother never displayed her struggle. She confronted it daily with lists, drawings, and a dignity that shielded us from the true extent of her battle. If you knew her, you are aware that she abided by the principle: never let them see you cry, and God’s plan surpasses ours. Due to this, we didn’t diagnose the disease until it was advanced, at Stage 6/7, and by then, it’s just a waiting game. Thankfully, our dad could provide the care and support she needed, allowing her to remain at home, in her comfort zone and safe place.

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But that came with sacrifices. His life transformed dramatically and to an unfathomable extent. He became her primary caregiver, unable to leave her alone without the supervision of someone familiar, and that is certainly a burden to bear. He neglected his health, he wasn’t the priority, and his mental health suffered as he watched his wife of 38 years fade away before his eyes.

Consequently, we choose to act, to do something meaningful for the caregivers. We need to find ways to furnish resources and support so that while they are caring for their loved ones and keeping them at home, they do not lose themselves. Join us as we strive to do just that!